Hello friends,
Thank you for all your prayers. Lydia is almost to the much anticipated Long Term Maintenance! These past high dose chemotherapies have been intense. She unfortunately did get mucositis again, but thankfully we were able to get the meds to treat her outpatient this time. Please pray they continue to heal while we wrap up this phase.
She will have more chemo this week, possibly. The doctors will assess her and adjust her meds accordingly. If she is able to continue on schedule, she will be on track to resume life cautiously as before.
We are so thankful to God for His Goodness and Mercy during all of this. We will still have a long year and a half to go, but he has provided all our needs and Lydia has been doing very well by his grace.
Lydia is very much a fighter. She handles most things very well. She has been so brave, tough, and just amazing.
She still struggles with getting accessed (the IV needle being placed into her port) but she has gotten a lot better with coping with it.
Her hair is starting to grow back!! We have nicknamed her “kiwi” because it’s more fuzzy than peach fuzz, but still very short. There is a chance she could lose her hair again during Maintenance, but her doctors think since she held onto her hair for so long the first time they think it will just continue to grow from here.
I’m not sure what returning to “normal activities” will look like. I’m an overprotective mama bear to begin with so pray for comfort and protection as we get back into the swing of things.
We will still be cautious and she still has things she can and can’t do until her port is out, but this is a huge step for us.
I’m so thankful for everyone who has prayed for Lydia and our family during these past 6 months. One post I’ll calculate how many pokes, transfusions, hospital visits and stays, miles on my van, hours spent at the hospital etc. we have been through.
I’ll post a more accurate description of what Long Term Maintenance looks like when I know more about it.
Please keep praying. She is still on track to “ring the bell” on 12.21.2025!! Looking forward to that day!
Life is precious. Each day, moment, & breath is a gift from God. Love one another, be thankful- there’s always something to be thankful for. We are trusting God to see us through this trial and he has and he will.
There are times I feel so down, bitter, angry, upset, and I remember that God is bigger and he knows our needs. I cannot imagine going through this without trusting in Him. We are so blessed.
Now, I’m getting very emotional, I’ll end the post here. Thank you all very much for your kindness, prayers, and love. Please keep praying!
-Sarah Jacquet
