MAR 05

Hello friends,

Lydia has entered a phase called Delayed Intensification 1. It is pretty much what it sounds like. Several rounds of intense chemo and more steroids. Her counts are expected to drop so we are back in quarantine for a while. This phase will be 29 days as long as there are no set backs. Her hair has started to thin quite a bit. Say a prayer for this sweet girl in that regard as well. She’s handling things so well. God is so good. We are incredibly thankful for the support and prayer we have around this sweet girl and our family.

She just received a chemo called Cal-Peg and it’s famous for having a negative reaction on the 2nd dose specifically. She had that yesterday and by God’s grace she didn’t have a negative reaction. You could feel the nervousness in the room while they started the infusion and the first 15 minutes are crucial. There were nurses all around, life saving medicine ready to be administered if she needed them and thankfully she didn’t need them. After the one hour mark went by, the nurses left the room and check in every 15 minutes. Lydia started to drink some water and as it happens from time to time she swallowed the water and it went “down the wrong way” and she began to cough. In a matter of seconds her room was filled with nurses ready to take action. I told them she just choked a bit on water, but for a few seconds things were intense.

Again, we are so thankful to be apart of a dedicated team to provide excellent care for our daughter. We are thankful to God for doctors, nurses, child life specialists, and many more staff members. We’ve even befriended the security guard named Eddie. He greets us so cheerfully when we come in and we are just thankful with the friendliness of just about everyone we have come across.

Sorry for the lengthy update. I just don’t know what to say. I’m so grateful. Lydia has been handling things so well. Since things have been going so well, I’m almost on more of a high alert expecting it to go wrong at any minute. So I have to slow down and tell myself to appreciate the good days and take it one day at a time. 🧡

Praise God for His Goodness and Mercy,
– Sarah

Before chemo started
Abigail, Lydia, & Richard hugging after saying a prayer for her as she starts this new phase.